UCSF Pediatric Sarcomas

PROGRAM FEATURES

• Multidisciplinary, experienced group of pediatric oncologists, radiation oncologists and surgeons specializing in pediatric sarcoma treatment and follow-up care
• Phase 1 and other unique clinical trials unavailable elsewhere, many of which are developed and led by UCSF faculty
• Precision cancer medicine program that identifies genetic etiology of each case using the UCSF500 gene sequencing panel, which helps determine a personalized treatment plan for each patient
• Precise local control treatments for locally advanced or metastatic disease, including stereotactic radiotherapy, high-frequency ultrasound, intraoperative radiotherapy and interventional radiology-guided cryotherapy
• A hereditary cancer predisposition clinic with oncologists and genetic counselors who guide testing and help decrease risks for families with a strong history of sarcomas and other cancers
• Child life specialists who provide a healing environment for the entire family, with special programs for teens, music and art therapy, service dogs, games and an in-hospital school
• Pediatric rehabilitation therapy for post-treatment recovery

CONDITIONS TREATED

• Ewing sarcoma
• Desmoid fibromatosis
• Malignant peripheral nerve sheath tumors
• Malignant rhabdoid tumor
• Osteosarcoma
• Rhabdomyosarcoma
• Synovial sarcoma
• Other rare sarcomas

WHY REFER TO UCSF?

• Multidisciplinary and intensely collaborative care provided by experts in pediatric and medical oncology, general surgical and orthopaedic oncology, radiation oncology and interventional radiology.
• Access to investigational therapies through local and national consortia.
• The only hospital in Northern California that is a member of the National Cancer Institute’s Pediatric Early Phase Clinical Trials Network (PEP-CTN), a group developing new therapies for pediatric cancers.
• Availability of the UCSF Clinical Cancer Genomics Laboratory, the only resource in Northern California to offer a unique gene sequencing tool (the UCSF500) that can identify mutations in more than 500 genes involved in childhood cancer.
• Surgical expertise in complex resections and reconstructions, including pioneering work in osseointegration for patients undergoing amputation.
• Minimally invasive procedures for anatomic and molecular diagnosis, including interventional radiology and fine needle aspirates with immediate interpretation by cytopathology.
• Procedural support from pediatric anesthesia, pain management teams and child life specialists.
• Survivorship program for follow-up, education and ongoing clinical surveillance once a child has completed treatment for a bone or soft tissue sarcoma.

INFORMATION / REFERRALS

• PHONE (877) 822-4453 (877-UC-CHILD)
• FAX (415) 353-4485